Who We Are

The New Jersey Life Sciences Vendors Alliance (NJLSVA) is a coalition of businesses, individuals and academia who provide goods and services to New Jersey’s life sciences companies.

The NJLSVA was founded to educate suppliers on trends in industry procurement and public policy that affects the life sciences industry.

California Life Sciences Association (CLSA)

Opinion on Rare Disease Day 2017: ‘It’s Time to Close the Innovation Gap on Rare Diseases’

Washington, DC, February 28, 2017On Rare Disease Day 2017, Jennifer Nieto Carey, Vice President of Federal Government Relations and Alliance Development at California Life Sciences Association (CLSA), and Julia Jenkins, Executive Director of the EveryLife Foundation for Rare Diseases, write in The Hill:

This week, more than 300 rare disease patients and advocates will descend upon Washington to call on Congress and the new administration to take critical actions to close the innovation gap for the 95 percent of rare diseases that currently do not have one single FDA-approved therapy.

A rare disease affects fewer than 200,000 people in the United States. Yet, there are more than 7,000 such conditions affecting 30 million people, more than half of whom are children. Around a third of these children do not live beyond age five.  Continue reading