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The New Jersey Life Sciences Vendors Alliance (NJLSVA) is a coalition of businesses, individuals and academia who provide goods and services to New Jersey’s life sciences companies.

The NJLSVA was founded to educate suppliers on trends in industry procurement and public policy that affects the life sciences industry.

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Save the Date! ‘New Jersey Rare Disease Day 2017’ Set for February 27 in Trenton

Rare Disease DayTrenton, NJ, January 29, 2017 — New Jersey’s rare disease community will gather to celebrate Rare Disease Day 2017 on Monday, February 27 from 9:00 a.m. to 12:00 p.m. at the New Jersey Business and Industry Association (NJBIA) at 10 West Lafayette Street in Trenton.

The half-day event will be sponsored by BioNJ, the HealthCare Institute of New Jersey (HINJ), New Jersey Rare Disease Alliance and NORD.

The morning will begin at 9:00 a.m. with coffee, pastries and networking, followed by speakers from the rare disease community, including patients, patient advocates, legislators, biomedical healthcare professionals and life sciences community leaders.

Topics will include addressing the needs of people with rare diseases through legislation and inclusion of the patient voice in the drug-development process.

Business and industry leaders will speak about the spirit of innovation in New Jersey and the academic community’s role.

In addition, a member of the New Jersey Legislature will present a ceremonial resolution commemorating Rare Disease Day 2017 in New Jersey.

Following the presentations, patient advocates will walk to the State House to meet with legislators.

Registration information will be forthcoming.